Daily Radiation and Chemo Induced Peripheral Neuropathy

Two weeks after my final round of chemotherapy ended 6 weeks of daily radiation began. By then I was just putting one foot in front of the other. I have heard horror stories of the pain and burning that radiation caused. If I’m being honest, my radiation was not as bad as I anticipated. Yes, I had some burns, deep aching, and additional exhaustion, but compared to chemo, not that bad. It was during these 6 weeks that the Chemo Induced Peripheral Neuropathy symptoms began. At first I didn’t know what was happening. My hands and feet were getting numb and feeling really heavy. Then they started tingling and burning. By the end of radiation I was barely able to walk because of the total numbness and excruciating pain (yes, at the same time) and was shuffling like an old person. The constant pain was so bad I barely got out of bed. I didn’t know how I was going to live like this (let me add that I was still terribly sick and weak from the chemo). My Oncologist sent me to a Neurologist specializing in Neuropathy. After evaluating me she asked what was the dose of chemotherapy drugs I was administered. When I told her about the high dose of Cisplatin she shut my chart and said there was never going to be any improvement. This was going to be a chronic condition I would have to learn to live with. Even at half the dose I was administered the Neuropathy would likely be total and permanent. She prescribed a high dose of Lyrica (which was later changed to 2400 mg/day of Gabapentin), said there was really no need to schedule a follow-up because there was nothing she could do, and that her office would continue to refill my prescription as long as I needed it (as in “forever”). Doctor 1, Hope 0. My logical brain understood what she said, the Cisplatin dose was twice the dose needed for permanent damage, this pain was my new normal. I didn’t want to accept it, but what choice did I have? After all she’s the expert. This is a question I still struggle with every day. You see, this was almost 4 ½ years ago and I am still in chronic pain. But I now believe that that doctor may know what she learned in Med School, but she doesn’t know me, my body’s ability to heal, or my God. I have spent the better part of the last 4 years researching alternative healing modalities and I have tried quite a few. I don’t mind being a guinea pig in this lab called my life. I will biohack myself until I heal this Neuropathy or run out of time on this planet (I will share the different modalities I have tried and what my thoughts/results are in future blog posts). You see, I truly believe that if I have hope it’s not over yet!

 

3 Comments

  1. Thank you for sharing. It is so true that we as patients have to be our own advocate and keep working to find a solution. Don’t ever give up!

  2. Hello, first thank you for sharing your story. It’s people like you that I want to reach. I am also a cancer survivor of Stage 3 Esophageal cancer. I had neuropathy before cancer from a botched back surgery but the Chemo brought it to a whole new level. I am here to tell you that I am not only free of all discomfort in my talilbone but I no longer suffer from the discomfort in my right leg and both feet!!! And really that all came about as bonus since I was suffering from far more concerning issues at the time. This all came about once I started using a medical device that addresses micro circulation and oxegenating the blood at the smallest of capillaries. The PEMF device was introduced to me while recovering from treatment. I had my esophagus removed and replaced with my stomach! I know, crazy right!? Well with the surgery it had many side issues and one was being able to eat, keep food down, getting enough nutrients and maintaining a healthy weight. The other serious issue was that I was unable to dispose of waste. It was painful and extremely unpleasant. Once I started with the device I immediately found that all my organs started working together and and within a short 3 months there was significant change! Mug has changed for me now and as I said earlier I also noticed that neuropathy was less and well as back pain. Since then I focused on the feet with my device and I no longer have the discomfort! I do hope this encourages you to try the device. It’s a life changer for sure!

    1. I’m so glad you are a fellow cancer survivor and found something that relieved your pain! I have heard of PEMF and have been considering checking it out. Thanks for sharing your experience, as we never know what might be the answer for others we come in contact with. That is why I share my experiences as well.

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