Doctors only know what they know

That may seem obvious, but it is important to understand and embrace.  What I mean by that is they know what they know until they know something different. The dogma for the longest time was that adult brains couldn’t generate any new brain cells or connections. You just use what you were born with.  Now neuroplasticity (the ability of the brain to form and reorganize synaptic connections, especially in response to learning or experience or following injury) is a generally accepted concept in the medical community. It also frustrates me to no end when I hear about a doctor telling a patient that there is no hope.  They are going to die or their health issue will never get any better.  Says who? I understand that their medical education, and maybe even their experience, leads them to believe that. But what doctors are sure of one day may vary greatly from what they know a short time later.  Discoveries and new treatments are coming every day.  And what about God?

I have many personal examples in my own life where doctors, or experts in their fields, said one thing and I showed them something entirely different.  Let’s begin at the very beginning.  While I was still in utero the doctors told my mother I was going to be a boy (because of my heartrate) and that there was a good chance I would be born with Down Syndrome (because of my mother’s age).  Neither is true.  During my birth there came a point where the doctors no longer believed they could save both my mother and me (I was breech, the labor had gone on for many hours, and I was too far along to perform a C-section).  They visited my father, in the waiting room, and asked him which one he wanted them to save. He chose my mother, but we both made it through alive and well.

Fast forward to much later in my life.  I was driving to work on a wet and windy road, one winter day, and hit a patch of black ice at 45-50 mph.  My SUV hit a utility pole head on.  The engine was pushed all the way to the dashboard.  I was in shock and sore but was able to get out of the vehicle.  When the EMTs arrived, they looked into the vehicle and then asked me what happened to the driver.  When I said I was the driver they couldn’t believe I was conscious (at best) or alive.  After being ambulanced to the ER and thoroughly checked out, a friend took me to the lot where my car had been towed.  The older gentleman who owned the lot approached us with a very somber look on his face and said “may I ask if the driver survived the crash?”  When I replied I was the driver he said “lady, you have an angel on your shoulder.”  I believe he was right.

And then there was the cancer journey.  I already described many of the things that happened in earlier posts, but some bear repeating in relation to this topic.  When I visited my first Oncologist, she said she thought I had stage 4 multiple myeloma and probably wouldn’t see Christmas.  I did not have multiple myeloma and that was in 2012, six Christmases ago.  When the biopsy determined I had Undifferentiated Pleomorphic Sarcoma, I was told it was a very rare and aggressive type of cancer and there really was not enough data to determine a survival rate, but it wasn’t high.  In fact, the likelihood of recurrence was greatest in the first 2-3 years.  Although it hasn’t been an easy journey, I’m still here 5 ½ years later with no recurrence.

Those are only a few of many examples I could tell you about, but I think you get my point.  Don’t let the doctors, or other so-called “experts,” steal your hope.  They only know what they know.  They certainly didn’t know me and they didn’t know my God.  I believe I will be here until God calls me home and only He knows when that will be.  So, when a well-meaning “expert” tells you something about you and your life, smile politely and remember they only know what they know.  Tomorrow they may know something totally different.  And never, ever let them steal your hope!!

 

And the results are in…

This latest round of scans was clear!  The exact terminology is “no evidence of recurrence.”  I couldn’t be more pleased or more thankful.  And I also found out what “the foreseeable future” means.  After 2 rounds of 3 month scans, the doctor said “see you in 6 months.”  I guess that means “the foreseeable future” is 6 months long.  Who knew!  I am so relieved to move back to 6 month intervals and look forward to clean scans in October and moving to once a year!!  I can hardly believe it.  Last October, the time of my scare, he had moved me to annual scans.  I was thrilled and so relieved.  Then the phone call came and it signaled a biopsy and 3 month scans once again.  I can’t even imagine what annual scans would feel like, but I am looking forward to finding out.

So, life picks up right where it left off.  I always find it interesting that scan day can lead to 1 of 2 very different experiences. Either it is a few hours (and a few days waiting for results) out of an otherwise normal week or life as you know it completely changes.  I describe that as throwing my life into a blender.  I think life, in general, is a lot like that.  You get in your car, to drive to work, and a car accident alters your life forever.  The phone rings in the middle of the night, telling you news you hoped to never hear, and life is never the same.  Your spouse comes home one day and tells you he wants a divorce.  Enter the “blender phenomenon.”  I have learned many lessons from that blender.  One is that I am much stronger than I ever thought I was.  Strength is forged in adversity, but if you recognize and embrace that strength today the lessons of adversity may not need to pay you a visit as often.  Another lesson is to never take today for granted, because tomorrow is not guaranteed. I have spent far too many todays wishing, praying, or working toward a different tomorrow.  I am finally beginning to embrace today as the gift it is and leave tomorrow to tomorrow.  The key word there is “beginning.”  I am such a work in progress.  So today I encourage each of you to embrace those lessons in your lives.  Do yourself a big favor and embrace them without having to experience the dreaded “blender phenomenon.”  Your soul will thank you!

 

For the foreseeable future

How long, exactly, is that?  According to my Orthopedic Oncological Surgeon, it is how long I have to go back to being scanned every 3 months.  As you may remember, last October were my 5-year scans. That was the appointment I was to move from 6 month to annual scans.  I was so looking forward to living in larger increments between “those” doctor’s appointments.  And then they thought they saw something and that led to a bone biopsy.  The great news is it did not show a return of the cancer! The not totally great news is it wasn’t definitive.  So now I return to 3-month scans “for the foreseeable future.”

I don’t know about you, but I don’t do well with open ended vagueness.  I want to know who, what, where, when, why, and how.  In the uncertain world of cancer, it almost never works out that way.   That’s where trust comes in.  Trust in your doctors, trust in your body (sometimes hard when you may feel it has let you down in the past), trust in what your gut is telling you, and trust in God and His plan for your life.  So, as I head into my next 3-month scans this coming week (prayers gratefully appreciated), I will choose to trust this journey will continue to work out for my best.  And that my foreseeable future will be nothing but bright.  I know it will be easier said than done, but I will choose it and then choose it again.  After all, the power to choose how we will view anything that happens in our lives is ours and ours alone.  So, let’s all choose to remain positive and enjoy each day that we are graciously given.  That’s a hopeful choice I can get behind.

 

Progress, not perfection

That’s a tough one for me.  You see, if I get 99% on the test of life, I will skim over that accomplishment and focus on the 1% I got wrong.  I know perfection is an elusive concept, but it doesn’t stop me from always trying to attain it.  That is where I find myself right now.  I have recently reached 2 big milestones, but I am spending my time and energy focused on how much further I have yet to go.  Do any of you do the same thing, or is it just me?  For your sake, I hope it’s just me.

As I mentioned in early blog posts, I broke my wrist in December and had to have follow-up bone cancer scans in January (from my biopsy scare in October).  The great news is my cast is off and my follow-up scans came back clear!!  Instead of savoring that news, I am now focusing on how far I have to go to get back strength and range of motion in my stiff and achy wrist and the fact that my cancer doctor wants to do yet another complete set of follow-up cancer scans in 3 more months, to be sure I am indeed all clear.  Don’t get me wrong, I am thrilled my cast is finally off and I am even more thrilled my January scans came back clear!!  Why can’t I just rest there for a while?  Instead, I’m on to the next thing that must be accomplished and must be accomplished right now.  Would I treat a friend this way?  Is that advice I would offer to a loved one?  No!  If a friend came to me with this perfectionistic attitude, I would tell her she should be so proud of all she’s already done and that trying to be perfect is not something to strive for, unless never succeeding is her top priority.  She needs to remember that that same strength that has gotten her this far will continue to carry her through all she has yet to complete.  That sounds like pretty good advice, doesn’t it?  Maybe I will try viewing myself through the eyes I use for those I love.  After all, shouldn’t we be kind to and love ourselves?  If perfection is something you struggle with, maybe you should give that perspective a try too.  Let’s all agree to begin viewing ourselves through a lens of grace.  Ahh, I feel lighter already.

 

Perspective is everything

There is a lyric in a song by American Authors that says “This is gonna be the best day of my life.”  It is meant as an upbeat sentiment, but that really depends on your perspective.  During some of my tough days, when I am waiting for test results, in a lot of pain, or particularly concerned with what the future may hold, I think “what if this is as good as my life will ever be?  What if I get bad news tomorrow, and this is the best day of what life I have left?  What if this is gonna be the best day of my life?”  I am not always in this place, but if I’m being perfectly honest, I have thought it more than once.

On the other hand, there are those days where you wake up refreshed and excited about what this day will hold.  Maybe you’re on vacation, in the early stages of a new relationship, or feeling particularly healthy and strong.  Your future looks bright and you feel unstoppable.  In this case, “this is gonna be the best day of my life” means something totally different.  That got me thinking about how the exact same words or the exact same life experiences can feel vastly different based solely on our perspective.  And that perspective, to a great degree, is our choice.  It helps me to see it as a choice because then I am not a victim in this experiment called life, I am a participant.  So, the next time I find myself worrying that this may be the best day of my life, I am going to try to remember my perspective is my choice.  Then, maybe, I can choose to sing along with American Authors that “this is gonna be the best day of my life!”